Tag: Alzheimer’s

Dying with Dignity: Legal and Ethical Complications for People Facing Cognitive Decline

Many people and their families begin to notice signs of Alzheimer’s long before the disease fully progresses. Neurologists can now detect indicators of brain deterioration that may begin 10-20 years prior to it becoming a major issue in someone’s life.

The problem with current diagnostic criteria —even if legislation eventually passes

— is that a person may live for several years after diagnosis with little visible change, only to then experience a rapid decline in mood, cognition, and functioning. Common symptoms include “sundowning,” anger toward family members who “just don’t get it,” depression, and anxiety. While many say, “Tomorrow is a new day,” those living through these realities know those “good” days can be few and far between.

Time feels heavier on our shoulders as we juggle work, caregiving, and personal responsibilities. This is especially true in colder climates or during long academic years, when many of us look forward to summer for renewal. Warmer weather often brings improved moods, more outdoor activity, and family time-reminding us how environment and balance affect mental health.

For those of us in the Northeast, “spring fever” is real. When the sun finally shines, it’s harder to stay focused indoors —we’d rather be outside. Students also reflect this seasonal shift: energy levels rise, attention wanes, and the end of the school year brings excitement and distraction. The longer days invite us all to slow down, reconnect socially, and find joy in simple experiences.

DEATH WITH DIGNITY AND THE RIGHT TO CHOOSE

As we continue to wait for legislation allowing the right to choose at the end of life, our emotions fluctuate between sadness and pain as we watch loved ones endure the agony of terminal illnesses. Many doctors, therapists, and families in states like New York-where no Death with Dignity Act currently exists-struggle with the lack of options for patients who wish to maintain autonomy over their lives and deaths.

Legislators often misunderstand how profoundly such laws could improve the quality of life for those facing irreversible decline.

Many individuals have long expressed their wishes to family members—whether or not their spouses are present—to ensure their preferences are honored if a serious illness occurs. I have always believed that no one should be forced to live in a state of severe cognitive, physical, or communicative impairment that strips away the independence and dignity they once had.

While documents such as a Do Not Resuscitate (DNR) order express one’s medical wishes, families or executors can sometimes override these decisions, especially when misinformation or guilt is involved. The result can be prolonged suffering, isolation in care facilities, and the loss of personal choice when it matters most.

In contrast, residents of several U.S. jurisdictions currently have access to medical aid in dying, which allows a terminally ill, mentally competent adult to receive a prescribed, lethal dose of medication from their physician. These include:

  • California – End of Life Option Act (2015/2016)
  • Colorado – End of Life Options Act (2016)
  • District of Columbia – Death with Dignity Act (2016/2017)
  • Hawaii – Our Care, Our Choice Act (2018/2019)
  • Maine – Maine Death with Dignity Act (2019)
  • New Jersey – Medical Aid in Dying for the Terminally Ill Act (2019)
  • New Mexico – Elizabeth Whitefield End of Life Options Act (2021)
  • Oregon – Death with Dignity Act (1994/1997)
  • Vermont – Patient Choice and Control at the End of Life Act (2013)
  • Washington – Death with Dignity Act (2008)

Montana has no formal statute but, since a 2009 state Supreme Court ruling, does not prohibit a physician from honoring a terminally ill, mentally competent patient’s request for aid in dying..DeathwithDignity.org, TriageCancer.org

The Right to Self-Actualization

I am of the opinion that the right to self-actualization-the ability to live and die according to one’s values, beliefs, and definition of dignity —is a fundamental human right. When a person faces terminal illness or irreversible decline, allowing them to make informed, autonomous decisions about their care is not an act of despair but of profound self-respect.

True compassion lies in honoring choice. It is about empowering individuals to define what quality of life means to them, to express their final wishes clearly, and to have those wishes respected without shame or legal barriers. As medical science advances, so too should our understanding of dignity-not only in how we live, but in how we choose to leave this world.

Marcy Abramsky, LCSW•2025

 

Therapeutic Greens by CarePatrol

Julie Lewinski, Licensed Occupational Therapist, Certified Fall Prevention Specialist, Certified Dementia Care Specialist

Get Ready to Hear What

CarePatrol

Did for Seniors in an Assisted Living/ Memory Care Facility   (Park Creek)?

https://www.carepatrol.com/advisors/buffalo-niagara-ny/

First …Care Patrol is an Amazing Organization• Julie Lewinski is an incredible person with a 💛of gold.

Julie has a heart for helping seniors and their families navigate the oftentimes challenging process of finding the best possible senior living scenarios. All CarePatrol senior placement services are designed to find to find the best community for your loved one.

Ty to Park Creek for sharing ..

“We could not ask for better weather for our therapeutic garden reveal
reception, and we cannot thank
enough Julie Whitbeck-Lewinski from
Care Patrol and the students Madison
Flury, Hanna Wozniak, and Matthew
Ackley from SUNY Erie OT program!!!
They gave us 200 hours of volunteer
work from meeting with Residents to
get their input; to special projects with
Residents over the winter: to back-
breaking in the dirt labor!!
And if that wasn’t enough, today they
donated additional tools and materials
to keep this garden growing. This labor of love will continue to give back for years to come, with our Residents having easier access to continue the gardening that they have loved Erie cc OT students” ( Park Creek) 2022

Parenting Our Parents Mindfully

Memories with our parents or the people we loved that took care of us…

Sometimes it feels like just yesterday when I learned how to ride a bicycle, or began having more life talks over coffee, and eventually moved away!
Alternatively, some people may never have a memory that recall as positive, or a talk where they saw  “eye to eye” with their parent(s) or guardian(s).

Nonetheless, there will come a time when they need you. That time can feel special, awkward, aggravating and uncomfortable. This is when you start to become more aware of your past, and determine if you will let it determine your future actions. Most people choose to become responsible, and MINDFUL that another life, an adult life is relying on YOU.

Now, regardless of the relationship, if you are able, you have to use your inner strength to see that this life is in your care. A huge responsibility, especially if you are like so many people, since childhood trying to meet the expectations of that person. It doesn’t end here. That seems to seems to carry forward during this time too. You can control that too, although initially it is hard.

For me, Alzheimer’s was the poison. I would have thought memory care facilities would have been easier to tolerate. The person’s awareness wasn’t as sharp. Sometimes, they didn’t even know where they were.. so why did it matter?
It was terrible, in fact, it was so much worse. I had to face my own expectations ( even higher than any I felt before). Why? My parent couldn’t call or verbally communicate to me  anything about the care or their living experience.  Due to that, it was a second job to get close to staff, and figure it out on my own. I knew enough to move several times. Finally, we have it the best I believe that we  can. I attribute this to learning more and to an incredible woman who places people for a living.
We want to support you too-

In the coming days… I will address

HELP for Taking Care of Your Adult Parents

Signs ( when is it time for help)

Steps ( what to do and look for

Plus Expert Advice from a Professional in the Business of Helping Families Find the Best for Their loved Ones…

Feel free to connect if you need anything sooner! Be safe!